22. My Mother

It’s been such a long time since I’ve written. I haven’t forgotten about it. Life gets in the way, as it does for us all. When I think about it, I’ve given much thought to what to say next. The story of the unfolding of the mysteries of my life have been told. At least,Continue reading “22. My Mother”

20. Thankful

Yesterday, our two boys had their procedures to embolize the AVMs in their lungs- just as I did last November. Connor had one in his lower left lung. Brady had two- one in his upper right, and one in his lower right lung. They were scheduled to have this done last March, the week thatContinue reading “20. Thankful”

18. Family Tree

Not much to say today, but more than once I’ve had requests for a family tree. I get it. It’s a big family and a lot of names are flying around in this story. It can be easy to get confused. I’m living it, and it took me a while! Below is a VERY roughContinue reading “18. Family Tree”

15. My life- Saved.

Before I get started with this entry, I’m very happy to say that I can freely share this piece of information. I am employed by, and have received all my care for myself and my children through Cincinnati Children’s Hospital Medical Center. We are patients of the HHT Center of Excellence, and I have nowContinue reading “15. My life- Saved.”

14. Testing and Diagnosis

Remember WAY back in post number 6- I talked about needed to split the stories of the birth family journey and the journey toward finding out more about HHT? Well…it’s time to come back to the HHT piece of the story. At this point, it’s near the end of June 2019. Only a little moreContinue reading “14. Testing and Diagnosis”